Last week was Alicia’s week going to day camp. It sort of didn’t work out because the staff didn’t understand Alicia nor how to handle her (and sometimes we don’t either). It would have been a much better situation if she had gone to camp from the beginning. Maybe next year.
Maria has been working hard on visiting other schools for Alicia and working with our education consultant a lot. We’re trying to do what she has recommended. But don’t know if we have enough time to make it all happen for September.
The new TSS and BSC seem to be working out fine. However, with both of them being pregnant, consistency would seem to be hard to accomplish. But time will tell.
We have gotten a new advocate from UCP – PA Elks. She will help us in the transition to adult services with Alicia. This transition to adulthood and the services that may or may not be there scares the heck out of me. I don’t have a warm and fuzzy feeling about the future. I don’t even feel good about the present. And I certainly don’t feel good about the past.
The transition between service providers seems to have gone smoothly. However, the old NBC provider was supposed to get an ICM for us, which has not happened. The old NBC provider also wanted us to go to couples counseling or something, that is not clear. I don’t know where this stands. I think we need to run these items by our consultant.
We had a good pizza outing this past Sunday with the Chester County Support Group families. It was good to do this after having a summer off for 2 months.
This week we have two doctor’s appointments (her psychiatrist and neurologist). More to follow.